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What to Expect During Visits

The center uses the CF Foundation’s clinical care guidelines, which reflect the latest  evidence-based care, during annual clinic visits, routine clinic visits, and as-needed visits. All patients over the age of 3 years will be asked to wear a mask in the waiting room and in the halls to protect themselves and others from the spread of bacteria. 

Annual Visits

The team will perform an in-depth review of every aspect of the child’s CF care. The visit will take at least half a day and include: 

  • Blood testing
  • Pulmonary function testing (PFTs) 
  • Chest X-ray 
  • Sputum or throat culture 
  • Glucose tolerance test  
  • Airway clearance review 
  • Nutritional evaluation 
  • Social work assessment

Routine Visits

Routine clinic visits are scheduled every month for infants 0-6 months of age, every 2 months for infants 6-12 months of age, and every 3 months for patients over the age of 1 year. These visits usually last from one-two hours and include:

  • Height and weight measurements
  • Pulmonary function testing (PFTs) 
  • Meeting with a CF physician, nurse practitioner and other caregivers as needed

As-needed Visits

If the patient is sick, has a cold that is lasting longer than normal, or develops an increased cough or other difficulties, call the CF center nurse at WHAT NUMBER. She may recommend treatment over the phone or schedule a visit at the CF center to address the symptoms. As-needed visits may be scheduled more frequently if the patient is having  concerns such as poor weight gain or if he or she has been recently diagnosed with CF.


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